Having a child with PRS can be a bit overwhelming at the best if times, but I hope that you will be able to find some help, tips and reassurance on our site.Along with all the helpful tips we have on this site, we also have a Facebook page (see link below) where you will be able to connect with other parents also dealing with PRS.The main thing you need to remember is that you are not alone in all of this. We are all here to help and support you as much as we can.
Try not to focus too much on the condition itself, but on your child, they will grow up so fast and become wonderful people. I can see now how much I missed with my son (born with PRS) growing up, compared to his younger brother (does not have PRS).
Don’t lose sight of the medical side of things, but also don’t lose sight of your child growing up.
God Gives Special Babies To Special Parents!
DISCLAIMER: Pierre Robin Sequence Foundation is a network of parents/caregivers giving out advice from their personal experiences, and not from medical licensing or background. We do not claim to be more knowledgeable than a medical probationer or specialist. Please, if you have an “Urgent” question, seek out a medical professional or call your local Dr. We are glad to help you with support and share our stories with you, just remember, we are not a substitute for a medical professional!